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Boxing for Sara
Boxing for Sara
On the 1st of April KH Chemicals participated in the charity event “Boxing for Sara”. The registration fees of all participants are fully donated to this amazing foundation. The boxing event is initiated and organized by Stichting voor Sara (e.g. Foundation for Sara), founded at the end of 2016 by Sara Verbrugge’s parents shortly after they were told that Sara suffers from the incurable muscle disease Lama2-MD (also known as MDC1A). Children with this muscle disease generally do not grow old. In addition, the muscle weakness entails many limitations in daily life. That is why, since the diagnosis, Stichting voor Sara has committed itself with heart and soul to Sara and all other children with this terrible muscle disease. Besides that, the foundation also strives to publicize the many dozens of unknown and very rare muscle diseases and the impact for patients and their families.
The founders of Stichting voor Sara are convinced that all muscle diseases should be eradicated and that is only possible through good medical research. It is currently difficult to raise funds for small patient groups. Fewer investments are made which is why there is less research into these rarest muscle diseases. However, these muscle diseases are no more difficult to solve and these patients should also be entitled for a chance at a healthy life.
KH Chemicals hopes that Sara will be able to lead an independent and happy life later, despite her muscle disease. We believe that children and adults with a muscle disease can and should have a healthier future thanks to better diagnostics, good care and ultimately treatment. This is way we participate in this charity event for several years now, we truely hope that all these patients can grow old and live carefree. Just because it’s all about people.

Spinning for Sophia
Do you know that no less than 1 million Dutch people suffer from a rare disorder and that the majority, more than 80%, are children? Many of these disorders are often still unknown to doctors which makes timely recognition not only very difficult, but in many cases it even leads to a (too) late diagnosis with all the unpleasant and risky consequences that entails.
Many parents do not feel heard, simply because there is more attention and care for the “known” conditions. In addition, there is no treatment plan for most rare disorders, so don’t be alarmed, as many as 30% of these children die before their 5th birthday. You will undoubtedly agree with us: we have to do something about this!
On February 12, a delegation from KH Chemicals participated in “Spinning for Sophia” to raise as much money as possible for this great initiative. At the time of writing, a total of EUR 457,021 has been raised, a wonderful amount that undoubtedly helped the Center for Rare Disorders of the Erasmus MC Sophia Children’s Hospital. By concentrating treatments, more intensive collaboration and intensive research, solutions can be sought more quickly and effectively and new medicines can be developed more quickly. KH Chemicals is happy and proud to once again have made this edition, together with all the other participants, a resounding success. See you next year Spinning for Sophia!
