Boxing for Sara
On the 1st of April KH Chemicals participated in the charity event “Boxing for Sara”. The registration fees of all participants are fully donated to this amazing foundation. The boxing event is initiated and organized by Stichting voor Sara (e.g. Foundation for Sara), founded at the end of 2016 by Sara Verbrugge’s parents shortly after they were told that Sara suffers from the incurable muscle disease Lama2-MD (also known as MDC1A). Children with this muscle disease generally do not grow old. In addition, the muscle weakness entails many limitations in daily life. That is why, since the diagnosis, Stichting voor Sara has committed itself with heart and soul to Sara and all other children with this terrible muscle disease. Besides that, the foundation also strives to publicize the many dozens of unknown and very rare muscle diseases and the impact for patients and their families.
The founders of Stichting voor Sara are convinced that all muscle diseases should be eradicated and that is only possible through good medical research. It is currently difficult to raise funds for small patient groups. Fewer investments are made which is why there is less research into these rarest muscle diseases. However, these muscle diseases are no more difficult to solve and these patients should also be entitled for a chance at a healthy life.
KH Chemicals hopes that Sara will be able to lead an independent and happy life later, despite her muscle disease. We believe that children and adults with a muscle disease can and should have a healthier future thanks to better diagnostics, good care and ultimately treatment. This is way we participate in this charity event for several years now, we truely hope that all these patients can grow old and live carefree. Just because it’s all about people.