Do you know that no less than 1 million Dutch people suffer from a rare disorder and that the majority, more than 80%, are children? Many of these disorders are often still unknown to doctors which makes timely recognition not only very difficult, but in many cases it even leads to a (too) late diagnosis with all the unpleasant and risky consequences that entails.
Many parents do not feel heard, simply because there is more attention and care for the “known” conditions. In addition, there is no treatment plan for most rare disorders, so don’t be alarmed, as many as 30% of these children die before their 5th birthday. You will undoubtedly agree with us: we have to do something about this!
On February 12, a delegation from KH Chemicals participated in “Spinning for Sophia” to raise as much money as possible for this great initiative. At the time of writing, a total of EUR 457,021 has been raised, a wonderful amount that undoubtedly helped the Center for Rare Disorders of the Erasmus MC Sophia Children’s Hospital. By concentrating treatments, more intensive collaboration and intensive research, solutions can be sought more quickly and effectively and new medicines can be developed more quickly. KH Chemicals is happy and proud to once again have made this edition, together with all the other participants, a resounding success. See you next year Spinning for Sophia!
